It is worth noting that the MS Coalition ( or on Twitter and /MSCoalition) is a great place to start your journey. The best part of exploring social media pages is the discovery of new ideas and meeting new people. There is quite a bit of overlap in these two categories, But many of the pages listed will take you in quite a few new directions. The second category will highlight pages that are focused on current news relating to MS research. The pages listed in this section will address a wide variety topics that will help with everyday living with MS as well as personal connections that will help you feel empowered. The first category will focus on pages that are primarily related to more personal connections. Privacy Rights Clearing House ( is a great site to help you learn about important privacyįor the purposes of this article, social media pages will be divided into two categories. Before you start, or even if you already use social media, a review of privacy issues is always a good idea. It is important to remember that privacy is always an issue when posting on social media. In addition, a search for the social media site of your choice on is a great way for beginners to get started. ![]() To help you get started, most sites have helpful how-to guides. You may already be using some of these, but, if you are not, joining is free and easy. has published a list of The Top 25 Social Networking Sites People Are Using. By visiting an organization’s social media pages you can participate in the conversation. There are so many MS organizations that have websites as well as social media accounts. Having an active presence online is a must these days. The web is not just for gathering information anymore. Using technology can help because you can make connections not only in your community, but also throughout the world with just a few clicks on your device. Promoting MS awareness, and helping people understand the challenges MS patients face, can be quite difficult because of the variety of both visible and invisible symptoms. Each person affected by MS will confront very different issues. ![]() Support for the RIDE Council has been generously provided by organizations including Bristol Myers Squibb and Biogen.MS is a misunderstood disease. We are happy to share our on-going activities and insights derived from Council and sub-council discussions with our funders.Ĭurrent Council Members RIDE Council Brochures Īccelerated Cure Project welcomes grants and sponsorship funding for the RIDE Council. If you would like to sign-up to receive updates on the Council’s activities, please fill out the form here. If you have any specific questions about the Council or participation, please feel free to browse the materials below or reach out to Kyle Shrivastava at. People with MS will havea group focused exclusively on ensuring their community is represented in crucial clinical trials and the resulting data Ĭompanies and organizations will havean informed inclusive and equitable group to help navigate the complexities of reaching and meaningfully including historically marginalized groups in their work. Researchers will havea resource to help design, discuss, and review new and existing research initiatives to ensure they meet their diversity goals and requirements Initial discussions are focused on increasing participation in the iConquerMS network in the future the RIDE council will also be able to provide guidance to other research initiatives. Together, we discuss the historical roots of underrepresentation in research and co-design strategies for increasing meaningful and beneficial research participation. RIDE Council members meet virtually for 1-4 hours per month, either as a large group or within sub-councils that focus on specific underserved communities. ![]()
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